Healthwise is a website that provides interactive decision support tools and reliable medical facts that are available to help individuals make end of life care decisions.
- The Palliative Care Institute
This Web site is dedicated to providing professional resources for anyone working or studying in the field of
palliative care. Information focuses around the three pillars of the Institute: education, research and practice.
Each month the Web site will feature a challenging "Case of the Month" with accompanying discussion.
Determining appropriateness for Hospice Care: Predicting a life-expectancy of 6 months or less usually involved a significant, documented deterioration in physical status/function such as weight loss or decreased function and/or and end-stage disease. Decline may also be due to refusal of treatments, medications or hospitalization aimed at improving or stabilizing an advanced disease.
- 20 Improvements in End-of-Life Care
This is a list of 20 things that internists should be asking and doing with patients who are at the end of life. The list was developed by Dr. Don Berwick from the Institute for HealthCare Improvement in April, 1999. The list of questions is an excellent way for physicians to organize their approach to a conversation with a dying patient. The questions cover all of the bases in terms of end-of-life care for the patient, and there are also some questions that doctors should be asking themselves about their own dying patients. The list continues with recommendations for how to care for the needs of patients and their families at the end of life.
- The EPEC Project
The AMA developed the “Education for Physicians on End-of-life Care (EPEC) Project to educate healthcare professionals in the essential clinical competencies of palliative care. Use this website to learn more about EPEC and becoming an EPEC trainer. The 1999 edition of the Participants Handbook is available on-line in pdf format and the accompanying slides in the ppt format.
- The End-of-Life Nursing Education Consortium
ELNEC aims to educate nurses about end-of-life care. Healthcare professionals can use this website to learn more about what ELNEC does, and the benefits of training nurses in the programs that they offer.
- The End of Life and Palliative Education Resource Center
Good source of provider educational materials on end-of-life care and issues.
- The Center to Advance Palliative Care
CAPC gives professionals them the tools, training and technical assistance necessary to start palliative care programs in health care settings. The CAPC website also offers a way for professionals to share information about starting palliative care programs.
- Dying Well
This website is incredible informative. It is based on the book “Dying Well” by Dr. Ira Byock, a palliative care physician, and maintained by him. The website features writings by Dr. Byock on what to expect and what to do at the end of life, and how to get the best end-of-life care. There is also an excellent FAQ section on what to expect at the end of life, and how to approach palliative care.
- Center to Improve Care of the Dying
The Center to Improve Care of the Dying maintains a website aimed towards health care professionals. The site provides tools to assess, improve, and enhance care for dying patients. There is also a guide for institutions to measure the quality of health care provided during an end-of-life experiences.
- Making Cancer Less Painful: A Handbook for Parents
This website is devoted to the palliative care needs of children who are dealing with serious, life-threatening diseases, primarily cancer. Parents of children with serious diseases would be the primary users of the site, as the information is meant to help parents help their children deal with cancer and the pain that comes with it. *Specifically for Children & Parents*
- Ethical Wills
Ethical wills are a way to share your values, blessings, life's lessons, hopes and dreams for the future, love, and forgiveness with your family, friends, and community. This website provides readers with a detailed explanation of what an ethical will is, when people should write them, and how to go about doing it. There is also a section for providers which can be used to help bring the idea of ethical wills to their patients and families in need.
- Strong Health's Palliative Care Program
- The Open Society Institute's "Project on Death in America"
The “Project on Death in America” worked to transform the cultural experience of dying and bereavement. The project is over, but the conclusions are available on this website to give people an insight into how America views death.
- The Open Society Institute's "International Palliative Care Initiative"
The “International Palliative Care Initiative” is an effort to increase awareness and knowledge about end-of-life issues in other areas of the world, specifically Central and Eastern Europe and the former Soviet Union.
- University of Toronto, Joint Center for Bioethics: End of Life
- Palliative Care
Description of the "Regional Palliative Care Program" in Edmonton, Alberta, Canada.